The parents of 12-year-old Halle Krawczyk of Salmon Arm received welcome news on Dec. 7, 2020 that the Medical Services Plan has reversed its decision and would fund her surgery in the United States for a rare cancer. However, the family is told they are still faced with at least $150,000 in additional expenses to be incurred during the six months in the U.S. throughout the surgery and recovery. (Contributed)

The parents of 12-year-old Halle Krawczyk of Salmon Arm received welcome news on Dec. 7, 2020 that the Medical Services Plan has reversed its decision and would fund her surgery in the United States for a rare cancer. However, the family is told they are still faced with at least $150,000 in additional expenses to be incurred during the six months in the U.S. throughout the surgery and recovery. (Contributed)

MSP to fund Salmon Arm girl’s surgery to combat rare cancer after reversing decision

Medical Services Plan reverses decision to not help with U.S. cost, parents still face $150,000 bill

Having a child diagnosed with cancer is an emotional roller coaster at best, but the Krawczyk family has just reached an unexpected high.

Monday afternoon, Dec. 7, 12-year-old Halle Krawczyk’s Vancouver oncologist informed the family that the Medical Services Plan (MSP) has reversed its decision to not fund Halle’s surgeries for ‘poorly differentiated chordoma,’ a rare and deadly cancer that affects one in 20 million people.

Although Carolyn and Matt initially expected the three required operations with a world-renowned surgeon in Pittsburgh would be more than $100,000, they learned Dec. 4 that the surgeries would actually cost a minimum of $325,000 Cdn.

With associated bills in Canada while not being able to work, along with hotel accommodation, transportation, medical insurance and more during the six months in the U.S., the family was looking at a total cost of at least $500,000.

They are thrilled with the news.

Although the Krawczyks are still left with at least $150,000 in immediate expenses following the MSP’s change of heart, Carolyn and Matt’s first concern was about those people who have been or will be donating money.

“We do not want anyone to be misled in their giving!” Carolyn wrote in an email to the Observer as soon as she received the news.

Read more: Salmon Arm parents raise funds for surgery to combat daughter’s rare cancer

Read more: UPDATE: Surgery, related costs increase fundraising goal for Salmon Arm girl

Read more: 2018 – Update: Drug for young Shuswap girl with cancer to be made available

Leading up to this, the family had been told that the doctor and his team in Pittsburgh are best qualified to perform the rare pediatric surgery. However, MSP had told them that the surgery can’t be funded because the Canadian policy is that if a doctor in Canada can do the surgery, then it won’t be covered in the United States, Carolyn said.

Although that might be a good policy for some surgeries, this one is different, she had said, noting that Canada just doesn’t have the experience. The U.S. sees many more cases of chordoma, with just five per cent of them pediatric. Halle’s form of chordoma is even more rare.

As well as two surgeries removing the rapidly growing tumours on two upper vertebrae and on the clivus behind her nose, she must also have a spinal fusion. Proton beam radiation following the three needed operations could then prolong her life indefinitely.

“We’ve got one chance, we don’t want to mess it up,” Carolyn said.

She explained that she and Matt have been focusing so hard on advocating for the surgery for Halle that tallying all the additional upcoming costs has been secondary.

“We’ve been in total fight mode to just try to get Halle help that we haven’t been able to focus on all the things we need to. Hopefully we can do that now.”

Right now, gratitude is the prevailing emotion: “The great news is we know Halle gets her best shot at beating this!!!”


marthawickett@saobserver.net
Like us on Facebook and follow us on Twitter

CancerSalmon Arm

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Rain clouds were absent for most of April in the West Kootenay. Photo: Betsy Kline
April precipitation only one-third of normal in West Kootenay

Third month in a row with below average rain fall

Central Mountain Air will be flying seven days a week this summer. Photo: Betsy Kline
Central Mountain Air increases Castlegar flights

West Kootenay Regional Airport will see flights to Vancouver seven days a week this summer

The Trail RCMP is sharing a warning that originated with the Nova Scotia RCMP regarding an online sexual exploitation scam targeting youth. Photo: Mohammad Metri on Unsplash
Trail RCMP warn of digital sexploitation scheme targeting youth

Police want to get the message out to victims that you are not alone.

Photo: RCMP
Rossland pedestrian dies after being pinned between 2 vehicles

RCMP Sgt. advises that victim services is available for anyone requiring help

Dani Evans with her brother Alex, 9, and George, her buddy dog (a guide dog for children). Photo: Bill Metcalfe
Visually impaired girl walks for Nelson Friends of the Family

Dani Evans is raising money through the month of May

A bullet hole is seen in the windshield of an RCMP vehicle approximately 4 km from Vancouver International Airport after a one person was killed during a shooting outside the international departures terminal at the airport, in Richmond, B.C., Sunday, May 9, 2021. THE CANADIAN PRESS/Darryl Dyck
Homicide team IDs man in fatal YVR shooting as police grapple with spate of gang violence

Man, 20, charged in separate fatal shooting Burnaby over the weekend

Laketown Shakedown has been rescheduled for 2022, with options for ticket holders to receive refunds or credit for future events. (File photo)
Sunfest country music bash won’t be shining on B.C. in 2021

Annual Vancouver Island Festival cancelled due to COVID-19, along with Laketown Shakedown

Tla-o-qui-aht First Nation elected chief councillor Moses Martin, who was also Chantel Moore’s grandfather, speaks to media in Port Alberni on Aug. 16, 2020, during a visit from NDP leader Jagmeet Singh following the police shooting of Chantel Moore. (Elena Rardon photo)
Mother of 2 shot by police in critical condition, says B.C. First Nation chief

Community ‘devastated’ by third member of 1,150-person Vancouver Island nation shot in less than a year

B.C. Agriculture Minister Lana Popham promotes the government’s BuyBC food program in 2019. (B.C. government)
Money running out for fresh fruit, vegetables, milk in B.C. schools

‘Looking at ways to support this type of program,’ minister says

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

(Paul Henderson/ Chilliwack Progress file)
Experts now predict 33.6% rise in B.C. home sales for 2021

BCREA economists also predict home prices to increase by 14.3%

B.C. Auditor General Michael Pickup in 2017. THE CANADIAN PRESS
B.C. didn’t effectively manage conservation lands program: auditor general

Michael Pickup says staff had limited approaches to resolving the unauthorized use of the most at-risk conservation lands

The majority of city council votes in favour of this design for a new Salmon Arm flag on Monday, May 10, 2021. (City of Salmon Arm image)
Majority of council salutes new flag for Salmon Arm

Two councillors raise concerns about logo being too corporate for a flag

(Pixabay)
B.C. doctors could face consequences for spreading COVID misinformation: college

College says doctors have a higher level of responsibility to not spread incorrect information

Most Read